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A Fresh New Hell

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Revenant

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Well, it had been my intent to make a post this week about some progress working on the Venezuelan competitive set - taking some pictures and buying some coins, getting some in the mail, but Monday night Sam had a seizure that would not stop. Which forced us to call an ambulance.

He's been in the hospital, intubated and under heavy sedation for going on 30 hours now. We're waiting to have some final test results soon but maybe they can bring him back up and take out the tube - EEG has been clean. He has an infection but We're waiting to hear if it's in the brain or ear related or if he'll need surgery to drain fluid.

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So not the update I wanted to make this week. But it's where I'm at.

After this we'll probably have emergency seizure meds to add to the list of things we carry with us everywhere we go just in case.

His medical history puts him at increased risk for seizure disorders and fibrular (sp?) seizures so this was always on the list of risks.

Edited:

So far no brain infection. Treating for a blood infection that will keep us here several days. Trying to get the tube taken out.

EDITED:

Officially no brain infection, but it sounds like we're getting an epilepsy diagnosis.  Also seems like the blood infection has a touch of pneumonia now so breathing tube is probably staying until tomorrow at least.

10/13: He was extubated around noon and he's doing well. Probably here several more days for IV antibiotics.

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...my most sincere empathy for u n ur wife n ur son...i will keep u all in my prayers n wish for a quick recovery....

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On 10/12/2022 at 10:09 AM, zadok said:

...my most sincere empathy for u n ur wife n ur son...i will keep u all in my prayers n wish for a quick recovery....

Ditto, there are no words I can add to zadok's to comfort you concerning the seriousness of Sam's condition. I just want to add my prayers to zadok's. 

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So sorry to hear this, praying for you all.

We have a family member with epilepsy - modern treatments have been very effective and no one would know without looking at the paperwork. The biggest inconvenience (and it is here in the UK) is that Sam will probably just need his driving licence renewed every few years.

Very best wishes

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Praying for Sam and the doctors as they pinpoint the problem and the treatment. Also that God will give you and your wife the peace you both need to get through this. 1st Cor 10:13 (God NEVER gives us more than we can handle with his help).

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On 10/15/2022 at 5:34 AM, Fenntucky Mike said:

Glad to read that he's recovering, hopefully you guys are outa there soon and Sam is back to his normal happy-go-lucky self. :wishluck:

Unfortunately it looks like they won't release him until his iv antibiotics are done, so we can't go home until at least 10/20 or 10/21. So I'll be spending this birthday in the hospital. But he's recovering. 

As usual he seems to be blaming Shandy for being here so he's talking a little to Ben and has said I love you to me but has refused to talk at all to Shandy.

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That little guy has been through so much in his short lifetime, as have all of you. I hope he is back to 100 percent health very soon, and you all have a wonderful, stress-and-sickness free holiday season.

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On 10/15/2022 at 10:59 PM, Just Bob said:

That little guy has been through so much in his short lifetime, as have all of you. I hope he is back to 100 percent health very soon, and you all have a wonderful, stress-and-sickness free holiday season.

He's on the mend. If the blood infection didn't require iv antibiotics this is the point where we'd be going home with pills and he'd be getting back to himself but we have to "serve" 5 days in this floor that feels a bit like a prison. Anyway...

My wife told me that it's in his chart that he stopped breathing in the ambulance/ the trauma roo. and it was considered a full code. So I think at one point we were in serious danger of losing him to the seizure. But We'll have rescue meds for next time.

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On 10/15/2022 at 10:59 PM, Just Bob said:

That little guy has been through so much in his short lifetime, as have all of you. I hope he is back to 100 percent health very soon, and you all have a wonderful, stress-and-sickness free holiday season.

If you do not count the NICU stay when he was born, we're up to 5 hospitalizations in 3.7 years. 2 Shunt revisions. 2 bouts of pneumonia / possible meningitis in this case. it just seems massively, massively unfair to a child where, every time everyone meets him, they talk about how sweet and loving he is.

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I just saw this and I am glad to see things are getting better for you guys. It is heartbreaking to see young people go through this kind of stuff. You and your family are in my thoughts.

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